Tag: chronicillness

  • In Gratitude to Kind Teachers

    In Gratitude to Kind Teachers

    We all know that in the United States under the American Disabilities Act, children have the right to a public school education. Many of us also know that what makes or breaks the success of this initiative is teachers and administrators. Some fight rules. Some hit the letter of the law but begrudge and guilt-trip. […]

  • NYTimes Says There’s Never Been A Better Time To Have a Headache

    NYTimes Says There’s Never Been A Better Time To Have a Headache

    Sunday’s NY times published a front-page article on headache. It talked about the decades (centuries) of neglect of headache disorders – a disease identified as one of the most disabling diseases in the world today. It talks about the FINALLY rising awareness of the seriousness of these diseases. It talks about new headache treatments – […]

  • The 1step2life Podcast

    The 1step2life Podcast

    Do you enjoy podcasts? Follow the 1step2life on Spotify, Google Podcasts, and other major platforms.

  • Beating yourself up about parenting?

    Beating yourself up about parenting?

    I have studied parenting on five continents for close to four decades. I’m also a mom — the mom of two sons, one of them who is very sick. I know what it is to beat yourself up about not being a perfect parent.  But too many parents beat themselves because they are trying to meet two entirely different, incompatible, and […]

  • Podcast: Parenting a Child With Migraine

    Podcast: Parenting a Child With Migraine

    I am so honored to be interviewed for the Living With An Invisible Injury podcast.  Listen here:

  • When Your Child Says They’re In Pain, Believe Them.

    When Your Child Says They’re In Pain, Believe Them.

    One of the hardest things about invisible illnesses is that they’re – um – invisible. No one can see them. Only the person who has them knows they exist. The most common chronic pain conditions in children and teens – headache, migraine, gastrointestinal problems, skeletal issues – are trivialized. That’s pretty awful. Anyone, anytime, can […]

  • Supporting Parents of Teens & Children In Pain

    Supporting Parents of Teens & Children In Pain

    I’m reading a book called The Midnight Library, by Matt Haig. It’s a fantasy – a parable really – about regret and depression and building a better life. Sounds odd for a book I picked because it was billed as ‘a feel good novel’ about a life well lived, doesn’t it? Did I mention that […]

  • How To Help When Your Child’s in Pain: Listen

    How To Help When Your Child’s in Pain: Listen

    When my child’s in pain, my first instinct is to try to fix it. That’s my job right? But it’s not always what they need. Sometimes they need to vent and blow off steam. This is hard for us. It’s worse for them. If we jump in too fast we’re not giving them permission to […]

  • Follow @1step2life on Instagram!

    Follow @1step2life on Instagram!

    Follow @1step2life on Instagram for information, inspiration, and conversation.

  • Biofeedback: Another Tool in Your Kit

    Biofeedback: Another Tool in Your Kit

    Chronic pain is something that can be treated in many ways. When I first got migraines, they were sudden and devastating. Within six months I went from perfectly healthy to migraines that lasted days to a week at a time. They were incredibly painful. I was unable to move and barely even able to go […]

  • 504s & IEPS: Children Have The Right To Go To School

    504s & IEPS: Children Have The Right To Go To School

    Although there are many things about living with a chronic condition that are tough for children and their parents, school is one of the most frustrating. This is a brief introduction to IEPs and 504s – the two major legal mechanisms governing the provision of educational services to students with disabilities in the United States. […]

  • Kids Who Go To School In Pain

    Note: I wrote this years ago, when my son’s migraines first when chronic. Much has changed in our lives. Sending him to school with his pain remains one of the hardest things my husband and I – and certainly our son – has ever had to do. But every single day he went – maybe […]

  • Being Organized Is Even More Important When You’ve Got No Energy To Spare

    Being Organized Is Even More Important When You’ve Got No Energy To Spare

    I write a lot about organizing, because I have too much to do and very few spoons to spare. I also know that if I don’t write things down, they spin around in my head and keep me from sleeping. If we try to keep everything in our head without an organizational system, we keep […]

  • Don’t Tell Me Everything Happens “For A Reason”

    Don’t Tell Me Everything Happens “For A Reason”

    Platitudes can hurt people in pain just as much as illness.

  • Neuroscience 101

    Feeling pain is an essential function of the brain and nervous system. Healthy pain keeps you safe when you touch something hot. It tells you to stop when you’ve exercised and your heart and lungs aren’t providing your muscles with enough oxygen. It reminds you to move when you’ve been sitting too long. Chronic pain, […]

  • Hydration Tip 1

    Hydration Tip 1

    Hydration is every doctor’s go to recommendation for anyone living with chronic pain. But it helps. Your cells can’t function properly without sufficient water. Not drinking enough causes pain all by itself that can’t be distinguished from pain due to illness. Plus – as I always tell my son – if you drink enough water, […]

  • A Life Changing Event

    A Life Changing Event

    When do I get my old life back? The answer is, you don’t. That’s why they call it a ‘life changing event.’

  • Incomplete Acts, Everyday Anxiety, and Getting Things Done

    Incomplete Acts, Everyday Anxiety, and Getting Things Done

    Four strategies to organize work and decrease anxiety.

  • Almost there . . .

    Almost there . . .

    We’ve been feeling like that pilot attacking the Death Star in Star Wars.

  • School: The Big Picture

    School: The Big Picture

    Families need to work together towards a shared goal: helping children grew into healthy happy adolescents and adolescents make successful transitions to adulthood.