I have done a LOT of reading about pain and parenting kids in pain. These are summaries of some of my favorites.
This is a fantastic paper by Benore, Fahrenkamp, Zhakunets, & Banez (2020) on how pain rehabilitation works in children. One key point: function comes before pain reduction. If you wait until your pain goes away to start doing things, your pain tends to get worse. But if you start doing things, the pain tends to decrease over time. We were very fortunate to work with the Cleveland Clinic Pediatric Pain Rehabilitation Program when my son’s pain was at his worst. The 1step2life app is very much grounded in their approach.
Following a low tyramine diet has been absolutely critical to our family. The three posts we have on this topic are among our most popular. Here are the key points to pin to your refrigerator.
It’s hard to think clearly when pain spikes. Planning ahead and assembling what you need will make it easier to cope when things get tough. This template will help you get started.
Chronic pain is fundamentally different than acute pain and it needs to be treated differently. The 1step2life YouTube channel has videos about how the nervous system works, the logic pain rehabilitation, and a video for children and adolescence about chronic pain.
Do you enjoy podcasts? Follow the 1step2life on Spotify, Google Podcasts, and other major platforms.
Service, therapy, & emotional support dogs are very different from each other. Learn how!
Stimulate your vagus nerve. Try humming to refocus when you have brain fog.
Learning to breathe, meditate, or do biofeedback doesn’t have to be hard. It doesn’t have to cost money. It doesn’t require you to leave your house. It’s BREATHING and focusing. It’s what people did in cold medieval churches and in Tibetan monestaries. It’s what I learned to do – and got me through – labor!…
Cycles of Five is a simple technique to break pain and anxiety cycles.
Stress and anxiety make pain harder to cope with. This simple technique uses no tech and no equipment. Just use a finger and a hand to help you time and slow down your breathing. Focusing on the touch can make it easier to focus on breathing. You can repeat this exercise as often as needed.…
One of the best things I learned when my son became ill with chronic migraines was patience. That and teamwork. The Doctors will tell you that adolescents with migraines have to keep interacting with the world. That is really difficult for parents to get their heads around. Kids have to keep going to school even…
We all know that in the United States under the American Disabilities Act, children have the right to a public school education. Many of us also know that what makes or breaks the success of this initiative is teachers and administrators. Some fight rules. Some hit the letter of the law but begrudge and guilt-trip.…
I have studied parenting on five continents for close to four decades. I’m also a mom — the mom of two sons, one of them who is very sick. I know what it is to beat yourself up about not being a perfect parent. But too many parents beat themselves because they are trying to meet two entirely different, incompatible, and…
I am so honored to be interviewed for the Living With An Invisible Injury podcast. Listen here:
The fact that the 1step2life app grew completely out of our experience as a family is so deeply ingrained into the fiber of my being that I forget to tell people about it. Hence this post. I was asked for information about 1step2life by the editors of MyChronicBrain – an online magazine and newsletter for…
It’s been discouraging lately. Things seem better. Classes finished. Social life opening up. Exercise improving. But the setbacks still get you. The mourning for where you think you should be instead of where you really are. That’s where I was today. Until I got into my car. I opened the back door. The dog jumped…
I remember that sick feeling in the pit of my stomach every Sunday afternoon. Sunday at 3:00 was youth orchestra. When my son first developed migraine disease, attacks came like clockwork. Every Sunday around 2:30, he’d begin to yawn. Then the auras would start. I’d see him start wincing from light and then, just as…
Neurons are made up of cell bodies and finger-like dendrites. A ganglion is a clustered bundle of nerve cell bodies and associated dendrites assembled together to accomplish a discrete function. For example, the sphenopalatine ganglion (SPG) is located deep between the eyes. Among its many functions are regulating blood flow in the turbinates and facial…
The first time I noticed I had Raynaud’s was in the kitchen. My hands felt kind of funny and I looked down and they were green. Not a little green. Like GREEN. And entirely numb. I started to move them and they completely spasmed. No pain. Just bright green hands that were spasming. Then they…