Tag: spooniekids

  • Chronically Ill Teen? Fighting the Dread

    Chronically Ill Teen? Fighting the Dread

    I remember that sick feeling in the pit of my stomach every Sunday afternoon. Sunday at 3:00 was youth orchestra. When my son first developed migraine disease, attacks came like clockwork. Every Sunday around 2:30, he’d begin to yawn. Then the auras would start. I’d see him start wincing from light and then, just as […]

  • How Do Doctors Build Trust?

    How Do Doctors Build Trust?

    Doctors, patients, and caregivers all bring something different to the table. All contribute to healing. The patient has the lived experience. It is their body. Their life. It is their decision what they decide to do and take from the relationship in the hope of moving forward. The caregiver brings support. Often – especially when […]

  • When Your Child Says They’re In Pain, Believe Them.

    When Your Child Says They’re In Pain, Believe Them.

    One of the hardest things about invisible illnesses is that they’re – um – invisible. No one can see them. Only the person who has them knows they exist. The most common chronic pain conditions in children and teens – headache, migraine, gastrointestinal problems, skeletal issues – are trivialized. That’s pretty awful. Anyone, anytime, can […]

  • Supporting Parents of Teens & Children In Pain

    Supporting Parents of Teens & Children In Pain

    I’m reading a book called The Midnight Library, by Matt Haig. It’s a fantasy – a parable really – about regret and depression and building a better life. Sounds odd for a book I picked because it was billed as ‘a feel good novel’ about a life well lived, doesn’t it? Did I mention that […]

  • Balancing Challenge & Support

    Balancing Challenge & Support

    Urie Bronfenbrenner was one of the giants of 20th century developmental psychology. One of the founders of HeadStart, Urie had many favorite sayings about raising children. In additional to studying children for more than half a century, he also had five of his own. One person who is crazy about you One thing that fascinated […]

  • Quieting Your Inner Voices So You Can Hear Your Child’s Pain

    Quieting Your Inner Voices So You Can Hear Your Child’s Pain

    Nothing is more distressing than listening to a baby cry. I’m not just saying that about me. There’s a lot of research on the topic. When we hear a child in distress all we want to do is make it stop. Their hurt makes us hurt. I don’t think that ends when they’ve grown. I […]

  • Acute Pain Protects Chronic Pain Harms

    Acute Pain Protects Chronic Pain Harms

    It’s hard to believe that pain is ever good. But it is. A friend developed a condition where she was able to move her lower body, but couldn’t feel pain and had no sensation. The biggest danger she faced was injuring herself because her warning system – pain – didn’t work. Chronic pain, on the […]

  • Are you drinking TOO MUCH water?

    Are you drinking TOO MUCH water?

    Hydration is important for everyone. Folks with chronic pain get really tired of being asked if they’re drinking enough water. I know my son does. But how much too drink is a more complicated question than it first appears. And important enough to thinking about before rolling your eyes when asked – when more time […]

  • Kids Who Go To School In Pain

    Note: I wrote this years ago, when my son’s migraines first when chronic. Much has changed in our lives. Sending him to school with his pain remains one of the hardest things my husband and I – and certainly our son – has ever had to do. But every single day he went – maybe […]