Tag: KidsInPain

  • Programs to Treat Children in Pain

    Programs to Treat Children in Pain

    There used to be just a few dozen practices in the world that specialized in treating childhood pain. Now there are 100 in 16 countries. Check out the updated list.

  • In Gratitude to Kind Teachers

    In Gratitude to Kind Teachers

    We all know that in the United States under the American Disabilities Act, children have the right to a public school education. Many of us also know that what makes or breaks the success of this initiative is teachers and administrators. Some fight rules. Some hit the letter of the law but begrudge and guilt-trip. […]

  • NYTimes Says There’s Never Been A Better Time To Have a Headache

    NYTimes Says There’s Never Been A Better Time To Have a Headache

    Sunday’s NY times published a front-page article on headache. It talked about the decades (centuries) of neglect of headache disorders – a disease identified as one of the most disabling diseases in the world today. It talks about the FINALLY rising awareness of the seriousness of these diseases. It talks about new headache treatments – […]

  • The 1step2life Podcast

    The 1step2life Podcast

    Do you enjoy podcasts? Follow the 1step2life on Spotify, Google Podcasts, and other major platforms.

  • Podcast: Parenting a Child With Migraine

    Podcast: Parenting a Child With Migraine

    I am so honored to be interviewed for the Living With An Invisible Injury podcast.  Listen here:

  • Why did a psychologist who studies families develop an app for tracking pain?

    Why did a psychologist who studies families develop an app for tracking pain?

    The fact that the 1step2life app grew completely out of our experience as a family is so deeply ingrained into the fiber of my being that I forget to tell people about it. Hence this post. I was asked for information about 1step2life by the editors of MyChronicBrain – an online magazine and newsletter for […]

  • Keeping What’s Good About This Crazy Year

    Keeping What’s Good About This Crazy Year

    This year of COVID has been a year of loss. Loved ones. First dates and coffee with old friends. Shared worship. Beach parties. From the profound to the trivial. For many who live with complex illnesses or who struggle to get out of the house and make it to school or work, it’s also been […]

  • When Your Child Says They’re In Pain, Believe Them.

    When Your Child Says They’re In Pain, Believe Them.

    One of the hardest things about invisible illnesses is that they’re – um – invisible. No one can see them. Only the person who has them knows they exist. The most common chronic pain conditions in children and teens – headache, migraine, gastrointestinal problems, skeletal issues – are trivialized. That’s pretty awful. Anyone, anytime, can […]

  • How To Help When Your Child’s in Pain: Listen

    How To Help When Your Child’s in Pain: Listen

    When my child’s in pain, my first instinct is to try to fix it. That’s my job right? But it’s not always what they need. Sometimes they need to vent and blow off steam. This is hard for us. It’s worse for them. If we jump in too fast we’re not giving them permission to […]

  • Learning Biofeedback Doesn‘t Have to Be Hard

    Learning Biofeedback Doesn‘t Have to Be Hard

    Biofeedback is a set of techniques that allow you to exert conscious control over what are normally involuntary biological functions. For example, consciously slowing your breathing and heart rate are common forms of biofeedback. With more practice, you can learn to increase circulation in your hands and warm them up. You can become more conscious […]

  • Assemble A Rescue Kit For Your Next Pain Spike

    Assemble A Rescue Kit For Your Next Pain Spike

    I walked into my son’s room this morning – it was immediately obvious it was one of ‘those’ days. Light sensitivity. Migraine spike. Fog. You know the gig. So I asked my usual self-care questions: Did you take your rescues? Water? Salt? Magnesium oil? Daily meds? “Yes. Yes. Yes. Yes. Yes.” No eye roll (thank […]

  • News 5 Cleveland Talks About 1step2life

    News 5 Cleveland Talks About 1step2life

    We were very excited that Taneisha Cordell of News5 Cleveland, an ABC affiliated covered the development of 1step2life. Development of the app was inspired by my son, Sean’s, struggles with intractable persistent pain. He talks here about his struggles and how 1step2life has helped him feel empowered to take back his life. For their full […]

  • Tiny Steps Towards Reducing Stress

    Tiny Steps Towards Reducing Stress

    Some days are worse than others. That’s just how it works. You can wake up today feeling refreshed and inspired to put your best foot forward. You can do all of your recommended exercises, eat all the “right” foods, think all the “right” thoughts, and still have pain flare-ups throughout your day. We can never […]

  • Kids Who Go To School In Pain

    Note: I wrote this years ago, when my son’s migraines first when chronic. Much has changed in our lives. Sending him to school with his pain remains one of the hardest things my husband and I – and certainly our son – has ever had to do. But every single day he went – maybe […]

  • A Life Changing Event

    A Life Changing Event

    When do I get my old life back? The answer is, you don’t. That’s why they call it a ‘life changing event.’

  • 5% of US teens live with life altering chronic pain

    5% of US teens live with life altering chronic pain

    Acute pain is protective. With chronic pain, the pain itself becomes the disease.

  • Taking Back Your Life

    Taking Back Your Life

    1step2life started with my son’s experience with severe chronic migraine disease. It made no sense to log pain when the pain is always there. What he needed was something that helped him celebrate his victories – making it to school, getting the mail, turning down the pepperoni pizza and sticking to his low tyramine diet. […]

  • Doctor! Doctor! It hurts when I do this.

    Doctor! Doctor! It hurts when I do this! Well . . . don’t do this.

  • New Edition Released of Parenting a Child in Chronic Pain

    As a developmental psychologist who has studied parenting on four continents, I can tell you a lot about raising teenagers. But nothing prepared me for watching my son shaking under the covers flinching from the light, and unable to speak from pain.

  • Priorities in Pediatric Pain: A Study In Contrasts

    Priorities in Pediatric Pain: A Study In Contrasts

    Today was a bad pain today. It was noon and already he’d taken all his rescue meds. He’d used all the tricks – double water, salt. He’d already done three hours of biofeedback. And there the pain was – a big looming suffocating force drilling into his brain.