Categories
Self Care Sleep Stress Reduction

Learning Biofeedback Doesn‘t Have to Be Hard

Biofeedback is a set of techniques that allow you to exert conscious control over what are normally involuntary biological functions. For example, consciously slowing your breathing and heart rate are common forms of biofeedback. With more practice, you can learn to increase circulation in your hands and warm them up. You can become more conscious […]

Categories
Caring for People in Pain First Person Self Care

Assemble A Rescue Kit For Your Next Pain Spike

I walked into my son’s room this morning – it was immediately obvious it was one of ‘those’ days. Light sensitivity. Migraine spike. Fog. You know the gig. So I asked my usual self-care questions: Did you take your rescues? Water? Salt? Magnesium oil? Daily meds? “Yes. Yes. Yes. Yes. Yes.” No eye roll (thank […]

Categories
About Us Caring for People in Pain

News 5 Cleveland Talks About 1step2life

We were very excited that Taneisha Cordell of News5 Cleveland, an ABC affiliated covered the development of 1step2life. Development of the app was inspired by my son, Sean’s, struggles with intractable persistent pain. He talks here about his struggles and how 1step2life has helped him feel empowered to take back his life. For their full […]

Categories
First Person Pain Rehabilitation Stress Reduction

Tiny Steps Towards Reducing Stress

Some days are worse than others. That’s just how it works. You can wake up today feeling refreshed and inspired to put your best foot forward. You can do all of your recommended exercises, eat all the “right” foods, think all the “right” thoughts, and still have pain flare-ups throughout your day. We can never […]

Categories
Caring for People in Pain First Person Parenting

Kids Who Go To School In Pain

Nancy DarlingFirst published in Psychology Today: Thinking About Kids October 2014 Note: I wrote this years ago, when my son’s migraines first when chronic. Much has changed in our lives. Sending him to school with his pain remains one of the hardest things my husband and I – and certainly our son – has ever […]

Categories
Caring for People in Pain First Person Parenting

A Life Changing Event

When do I get my old life back?

The answer is, you don’t. That’s why they call it a ‘life changing event.’

Categories
1step Comics Pain Physiology Pain Rehabilitation

5% of US teens live with life altering chronic pain

Acute pain is protective. With chronic pain, the pain itself becomes the disease.

Categories
About Us First Person

Taking Back Your Life

1step2life started with my son’s experience with severe chronic migraine disease. It made no sense to log pain when the pain is always there. What he needed was something that helped him celebrate his victories – making it to school, getting the mail, turning down the pepperoni pizza and sticking to his low tyramine diet. […]

Categories
Pain Rehabilitation

Doctor! Doctor! It hurts when I do this.

Doctor! Doctor! It hurts when I do this!
Well . . . don’t do this.

Categories
Caring for People in Pain First Person Parenting

New Edition Released of Parenting a Child in Chronic Pain

As a developmental psychologist who has studied parenting on four continents, I can tell you a lot about raising teenagers. But nothing prepared me for watching my son shaking under the covers flinching from the light, and unable to speak from pain.

Categories
Pain Rehabilitation

Priorities in Pediatric Pain: A Study In Contrasts

Today was a bad pain today. It was noon and already he’d taken all his rescue meds. He’d used all the tricks – double water, salt. He’d already done three hours of biofeedback. And there the pain was – a big looming suffocating force drilling into his brain.

Categories
App Development Pain Rehabilitation

Colors are Key!

Many people living with chronic pain have a condition called photophobia – their brain interprets light as a painful stimulus. That can make looking at screens a painful experience and makes designing an app extra challenging!

Categories
About Us App Development First Person Pain Rehabilitation

It’s not theory: Real voices from real people

1step2life’s core mission is to build an app that helps kids living with chronic pain get out of bed and into the world. There are many things that make this project special to me. One, in particular, is how many of the Oberlin students involved GOT involved because they suffer from pain themselves. When we […]

Categories
About Us Caring for People in Pain Pain Rehabilitation Parenting

Research: Do kids believe it’s okay for parents to set rules about rehab?

As children become teens, they take more and more control over the decisions that govern their lives. Parents set rules, but teens who disagree with those rules have choices: they can obey, argue, or hide the fact that they’re not doing what they’re supposed to. In the US, most parents and teens agree that it’s […]