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Resources

Children Have The Right To Go To School

Nancy Darling & Sean Burns Although there are many things about living with a chronic condition that are tough for children and their parents, school is one of the most frustrating. This is a brief introduction to IEPs and 504s – the two major legal mechanisms governing the provision of educational services to students with […]

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First Person Pain Rehabilitation Stress Reduction

Tiny Steps Towards Reducing Stress

Some days are worse than others. That’s just how it works. You can wake up today feeling refreshed and inspired to put your best foot forward. You can do all of your recommended exercises, eat all the “right” foods, think all the “right” thoughts, and still have pain flare-ups throughout your day. We can never […]

Categories
Pain Rehabilitation Parenting Scientific Research

Following Doctor’s Orders

When teens don’t believe parents or doctors have the right to set rules, they don’t follow them.

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Caring for People in Pain First Person Parenting

Kids Who Go To School In Pain

Nancy DarlingFirst published in Psychology Today: Thinking About Kids October 2014 Note: I wrote this years ago, when my son’s migraines first when chronic. Much has changed in our lives. Sending him to school with his pain remains one of the hardest things my husband and I – and certainly our son – has ever […]

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Caring for People in Pain First Person Stress Reduction

Being Organized Is Even More Important When You’ve Got No Energy To Spare

I write a lot about organizing, because I have too much to do and very few spoons to spare. I also know that if I don’t write things down, they spin around in my head and keep me from sleeping. If we try to keep everything in our head without an organizational system, we keep […]

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Pain Physiology Pain Rehabilitation Sleep

Sleep & Pain Rehab

Pain Rehab: Building Strength To Push Back Pain People living with pain are most successful at taking back their lives when they take an active role in their recovery. (That’s one of the reasons that 1step2life focuses on emotions, activities, and functioning.) For most of us, there is no ‘magic jelly bean’ that will suddenly […]

Categories
App Development First Person Pain Rehabilitation

Want To Hear The Science?

I was excited beyond words to be asked to present the 1step2life app to the team at the Cleveland Clinic Pediatric Pain Rehabilitation program on Monday. These folks are my heroes. For all the pain and trauma that my son’s migraine disease has introduced into his life, we’ve been incredibly lucky to live close to […]

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Pain Physiology Pain Rehabilitation

Chronic v. Acute Pain

Why do I hurt all the time? Healthy pain is like a good guardian. It keeps you from hurting yourself and teaches you to stay safe. This type of pain is called ‘acute pain’. Unfortunately, sometimes the acute pain system becomes too sensitive and overprotective. When that happens, you perceive pain as if you were injured, […]

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First Person

REPRESENTATION MATTERS

When we recognize ourselves in others we admire it allows us to imagine ourselves in a better future.

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1step Comics First Person

Don’t Tell Me Everything Happens “For A Reason”

Platitudes can hurt people in pain just as much as illness.

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Caring for People in Pain Pain Physiology Stress Reduction

Pain, Emotions, & the Amygdala

Pain leads to depression. Depression leads to pain. The amygdala mediates it all.

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Caring for People in Pain First Person Pain Rehabilitation Parenting

Pain, Ambiguous Loss, & Acceptance

Acceptance means holding both a painful now and a hopeful future in our minds· Death can be a harsh shock, as someone is ripped from us and is no longer present in our lives.  It has a finality to it – that’s part of the shock and much of the pain.  But it is real […]

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Pain Physiology Resources

Neuroscience 101

Feeling pain is an essential function of the brain and nervous system. Healthy pain keeps you safe when you touch something hot. It tells you to stop when you’ve exercised and your heart and lungs aren’t providing your muscles with enough oxygen. It reminds you to move when you’ve been sitting too long. Chronic pain, […]

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App Development Caring for People in Pain Parenting

Caregiver Mode: Unique to 1step2life

A mother’s despair This app began as a search for a tool. My son was in horrible pain – in bed, in the dark, barely holding on to school. When I looked at him, my first thought was always the same – How much pain is he in? Then I’d wonder if he’d taken his […]

Categories
App Development

The Daily Check In Empowers You to Use Energy Well

The Daily Check In can help you prioritize what is important to you and build a healthier balance in your life.

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Caring for People in Pain

We’ve Launched! The Weekly Check In

Everyone’s pain is different and everyone is in a different place in their journey.

Categories
Pain Rehabilitation Stress Reduction

Allodynia: Smell the Roses

Focusing all your attention on one manageable area of sensation can drown out the sensation of pain.

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Caring for People in Pain First Person Parenting

You Can Curse

How do you cope when things feel their worst? You can cry. Or laugh. Or curse.

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Diet and nutrition

Hydration Tip 1

Hydration is every doctor’s go to recommendation for anyone living with chronic pain. But it helps. Your cells can’t function properly without sufficient water. Not drinking enough causes pain all by itself that can’t be distinguished from pain due to illness. Plus – as I always tell my son – if you drink enough water, […]

Categories
1step Comics Pain Physiology Pain Rehabilitation

5% of US teens live with life altering chronic pain

Acute pain is protective. With chronic pain, the pain itself becomes the disease.