Sunday’s NY times published a front-page article on headache. It talked about the decades (centuries) of neglect of headache disorders – a disease identified as one of the most disabling diseases in the world today. It talks about the FINALLY rising awareness of the seriousness of these diseases. It talks about new headache treatments – […]
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I have studied parenting on five continents for close to four decades. I’m also a mom — the mom of two sons, one of them who is very sick. I know what it is to beat yourself up about not being a perfect parent. But too many parents beat themselves because they are trying to meet two entirely different, incompatible, and […]
I am so honored to be interviewed for the Living With An Invisible Injury podcast. Listen here:
The fact that the 1step2life app grew completely out of our experience as a family is so deeply ingrained into the fiber of my being that I forget to tell people about it. Hence this post. I was asked for information about 1step2life by the editors of MyChronicBrain – an online magazine and newsletter for […]
It’s been discouraging lately. Things seem better. Classes finished. Social life opening up. Exercise improving. But the setbacks still get you. The mourning for where you think you should be instead of where you really are. That’s where I was today. Until I got into my car. I opened the back door. The dog jumped […]
This year of COVID has been a year of loss. Loved ones. First dates and coffee with old friends. Shared worship. Beach parties. From the profound to the trivial. For many who live with complex illnesses or who struggle to get out of the house and make it to school or work, it’s also been […]
I’m reading a book called The Midnight Library, by Matt Haig. It’s a fantasy – a parable really – about regret and depression and building a better life. Sounds odd for a book I picked because it was billed as ‘a feel good novel’ about a life well lived, doesn’t it? Did I mention that […]
Urie Bronfenbrenner was one of the giants of 20th century developmental psychology. One of the founders of HeadStart, Urie had many favorite sayings about raising children. In additional to studying children for more than half a century, he also had five of his own. One person who is crazy about you One thing that fascinated […]
Nothing is more distressing than listening to a baby cry. I’m not just saying that about me. There’s a lot of research on the topic. When we hear a child in distress all we want to do is make it stop. Their hurt makes us hurt. I don’t think that ends when they’ve grown. I […]
When my child’s in pain, my first instinct is to try to fix it. That’s my job right? But it’s not always what they need. Sometimes they need to vent and blow off steam. This is hard for us. It’s worse for them. If we jump in too fast we’re not giving them permission to […]
Are you a fan of podcasts? Would you rather listen to the 1step2life blog than read? We will be podcasting many of our essays. Follow us on Breaker, Google Podcast, Pocket Casts, RadioPublic, Spotify, and Anchor (RSS). We will be adding new content as it comes out and slowly recording our catalog.
It’s hard to believe that pain is ever good. But it is. A friend developed a condition where she was able to move her lower body, but couldn’t feel pain and had no sensation. The biggest danger she faced was injuring herself because her warning system – pain – didn’t work. Chronic pain, on the […]
Hydration is important for everyone. Folks with chronic pain get really tired of being asked if they’re drinking enough water. I know my son does. But how much you should drink is a more complicated question than it first appears. And important enough to think about before rolling your eyes when asked – one more […]
Many types of pain – including migraines, amplified regional pain syndrome, and fibromyalgia – are caused by a failure of the nervous system. A negative spiral Acute pain protects us from tissue damage – we pull back from flames because we feel pain. Unfortunately, this healthy system can backfire. Many chronic pain conditions are caused […]
Biofeedback is a set of techniques that allow you to exert conscious control over what are normally involuntary biological functions. For example, consciously slowing your breathing and heart rate are common forms of biofeedback. With more practice, you can learn to increase circulation in your hands and warm them up. You can become more conscious […]
I walked into my son’s room this morning – it was immediately obvious it was one of ‘those’ days. Light sensitivity. Migraine spike. Fog. You know the gig. So I asked my usual self-care questions: Did you take your rescues? Water? Salt? Magnesium oil? Daily meds? “Yes. Yes. Yes. Yes. Yes.” No eye roll (thank […]
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It’s hard to find that balance between pushing too hard and giving up. But if you want things to change, laying down new habits is a start.
People who write love songs about walking in the rain don’t live in Ohio. In December. I do. I’m just going to say, cold rain is not my idea of romantic. Or comfortable. Miserable. It does come to mind when I think of the word ‘miserable’. I bring this up, because I was thinking about […]
We were very excited that Taneisha Cordell of News5 Cleveland, an ABC affiliated covered the development of 1step2life. Development of the app was inspired by my son, Sean’s, struggles with intractable persistent pain. He talks here about his struggles and how 1step2life has helped him feel empowered to take back his life. For their full […]
Some days are worse than others. That’s just how it works. You can wake up today feeling refreshed and inspired to put your best foot forward. You can do all of your recommended exercises, eat all the “right” foods, think all the “right” thoughts, and still have pain flare-ups throughout your day. We can never […]
I write a lot about organizing, because I have too much to do and very few spoons to spare. I also know that if I don’t write things down, they spin around in my head and keep me from sleeping. If we try to keep everything in our head without an organizational system, we keep […]
Pain Rehab: Building Strength To Push Back Pain People living with pain are most successful at taking back their lives when they take an active role in their recovery. (That’s one of the reasons that 1step2life focuses on emotions, activities, and functioning.) For most of us, there is no ‘magic jelly bean’ that will suddenly […]
Platitudes can hurt people in pain just as much as illness.
Faking being sick? I’m faking being well. And not that successfully.
1step2life started with my son’s experience with severe chronic migraine disease. It made no sense to log pain when the pain is always there. What he needed was something that helped him celebrate his victories – making it to school, getting the mail, turning down the pepperoni pizza and sticking to his low tyramine diet. […]
We’ve been feeling like that pilot attacking the Death Star in Star Wars.
I’ll be honest. I spend my life crazy stressed. I have a job that my husband describes as ‘flexible – you can work any 60 hours a week you like’. And then I have two more jobs – I am Editor in Chief of the Journal of Adolescence and I’m also starting this company. And […]
Doctor! Doctor! It hurts when I do this!
Well . . . don’t do this.
It’s so hard as a parent when you are desperately hoping your child will just make it to school and squeak through to graduation. And so hard to listen to even your dearest friends fret about things that you’d give your eye teeth to be worrying about. It’s just hard.
You know they mean well. You know they care. In fact, they’re trying to be sympathetic and make a connection. But when you tell them you have severe chronic migraines and they say ‘oh yeah, my sister-in-law gets migraines too’, and then ask if you if you’ve tried Excedrin Migraine . . . . No, […]
While we love the look of our original logo, many of our users have found that it has TOO MUCH WHITE! and that’s just hard on the eyes if you have migraines or photophobia.
Today was a bad pain today. It was noon and already he’d taken all his rescue meds. He’d used all the tricks – double water, salt. He’d already done three hours of biofeedback. And there the pain was – a big looming suffocating force drilling into his brain.