Tag: spoonies

  • Programs to Treat Children in Pain

    Programs to Treat Children in Pain

    There used to be just a few dozen practices in the world that specialized in treating childhood pain. Now there are 100 in 16 countries. Check out the updated list.

  • In Gratitude to Kind Teachers

    In Gratitude to Kind Teachers

    We all know that in the United States under the American Disabilities Act, children have the right to a public school education. Many of us also know that what makes or breaks the success of this initiative is teachers and administrators. Some fight rules. Some hit the letter of the law but begrudge and guilt-trip. […]

  • NYTimes Says There’s Never Been A Better Time To Have a Headache

    NYTimes Says There’s Never Been A Better Time To Have a Headache

    Sunday’s NY times published a front-page article on headache. It talked about the decades (centuries) of neglect of headache disorders – a disease identified as one of the most disabling diseases in the world today. It talks about the FINALLY rising awareness of the seriousness of these diseases. It talks about new headache treatments – […]

  • The 1step2life Podcast

    The 1step2life Podcast

    Do you enjoy podcasts? Follow the 1step2life on Spotify, Google Podcasts, and other major platforms.

  • Beating yourself up about parenting?

    Beating yourself up about parenting?

    I have studied parenting on five continents for close to four decades. I’m also a mom — the mom of two sons, one of them who is very sick. I know what it is to beat yourself up about not being a perfect parent.  But too many parents beat themselves because they are trying to meet two entirely different, incompatible, and […]

  • Podcast: Parenting a Child With Migraine

    Podcast: Parenting a Child With Migraine

    I am so honored to be interviewed for the Living With An Invisible Injury podcast.  Listen here:

  • Why did a psychologist who studies families develop an app for tracking pain?

    Why did a psychologist who studies families develop an app for tracking pain?

    The fact that the 1step2life app grew completely out of our experience as a family is so deeply ingrained into the fiber of my being that I forget to tell people about it. Hence this post. I was asked for information about 1step2life by the editors of MyChronicBrain – an online magazine and newsletter for […]

  • Reminders Of Progress

    Reminders Of Progress

    It’s been discouraging lately. Things seem better. Classes finished. Social life opening up. Exercise improving. But the setbacks still get you. The mourning for where you think you should be instead of where you really are. That’s where I was today. Until I got into my car. I opened the back door. The dog jumped […]

  • Keeping What’s Good About This Crazy Year

    Keeping What’s Good About This Crazy Year

    This year of COVID has been a year of loss. Loved ones. First dates and coffee with old friends. Shared worship. Beach parties. From the profound to the trivial. For many who live with complex illnesses or who struggle to get out of the house and make it to school or work, it’s also been […]

  • Supporting Parents of Teens & Children In Pain

    Supporting Parents of Teens & Children In Pain

    I’m reading a book called The Midnight Library, by Matt Haig. It’s a fantasy – a parable really – about regret and depression and building a better life. Sounds odd for a book I picked because it was billed as ‘a feel good novel’ about a life well lived, doesn’t it? Did I mention that […]

  • Balancing Challenge & Support

    Balancing Challenge & Support

    Urie Bronfenbrenner was one of the giants of 20th century developmental psychology. One of the founders of HeadStart, Urie had many favorite sayings about raising children. In additional to studying children for more than half a century, he also had five of his own. One person who is crazy about you One thing that fascinated […]

  • Quieting Your Inner Voices So You Can Hear Your Child’s Pain

    Quieting Your Inner Voices So You Can Hear Your Child’s Pain

    Nothing is more distressing than listening to a baby cry. I’m not just saying that about me. There’s a lot of research on the topic. When we hear a child in distress all we want to do is make it stop. Their hurt makes us hurt. I don’t think that ends when they’ve grown. I […]

  • How To Help When Your Child’s in Pain: Listen

    How To Help When Your Child’s in Pain: Listen

    When my child’s in pain, my first instinct is to try to fix it. That’s my job right? But it’s not always what they need. Sometimes they need to vent and blow off steam. This is hard for us. It’s worse for them. If we jump in too fast we’re not giving them permission to […]

  • We’re on Spotify!

    We’re on Spotify!

    Are you a fan of podcasts? Would you rather listen to the 1step2life blog than read? We will be podcasting many of our essays. Follow us on Breaker, Google Podcast, Pocket Casts, RadioPublic, Spotify, and Anchor (RSS). We will be adding new content as it comes out and slowly recording our catalog.

  • Acute Pain Protects Chronic Pain Harms

    Acute Pain Protects Chronic Pain Harms

    It’s hard to believe that pain is ever good. But it is. A friend developed a condition where she was able to move her lower body, but couldn’t feel pain and had no sensation. The biggest danger she faced was injuring herself because her warning system – pain – didn’t work. Chronic pain, on the […]

  • Are you drinking TOO MUCH water?

    Are you drinking TOO MUCH water?

    Hydration is important for everyone. Folks with chronic pain get really tired of being asked if they’re drinking enough water. I know my son does. But how much too drink is a more complicated question than it first appears. And important enough to thinking about before rolling your eyes when asked – when more time […]

  • Are migraines caused by an echo in the brain?

    Are migraines caused by an echo in the brain?

    Many types of pain – including migraines, amplified regional pain syndrome, and fibromyalgia – are caused by a failure of the nervous system. A negative spiral Acute pain protects us from tissue damage – we pull back from flames because we feel pain. Unfortunately, this healthy system can backfire. Many chronic pain conditions are caused […]

  • Learning Biofeedback Doesn‘t Have to Be Hard

    Learning Biofeedback Doesn‘t Have to Be Hard

    Biofeedback is a set of techniques that allow you to exert conscious control over what are normally involuntary biological functions. For example, consciously slowing your breathing and heart rate are common forms of biofeedback. With more practice, you can learn to increase circulation in your hands and warm them up. You can become more conscious […]

  • Assemble A Rescue Kit For Your Next Pain Spike

    Assemble A Rescue Kit For Your Next Pain Spike

    I walked into my son’s room this morning – it was immediately obvious it was one of ‘those’ days. Light sensitivity. Migraine spike. Fog. You know the gig. So I asked my usual self-care questions: Did you take your rescues? Water? Salt? Magnesium oil? Daily meds? “Yes. Yes. Yes. Yes. Yes.” No eye roll (thank […]

  • Follow @1step2life on Instagram!

    Follow @1step2life on Instagram!

    Follow @1step2life on Instagram for information, inspiration, and conversation.