Caring for People in Pain Self Care

Keeping What’s Good About This Crazy Year

This year of COVID has been a year of loss. Loved ones. First dates and coffee with old friends. Shared worship. Beach parties. From the profound to the trivial. For many who live with complex illnesses or who struggle to get out of the house and make it to school or work, it’s also been […]


504s & IEPS: Children Have The Right To Go To School

Although there are many things about living with a chronic condition that are tough for children and their parents, school is one of the most frustrating. This is a brief introduction to IEPs and 504s – the two major legal mechanisms governing the provision of educational services to students with disabilities in the United States. […]

First Person

Representation Matters

When we recognize ourselves in others we admire it allows us to imagine ourselves in a better future.